Services for children and young people in Northamptonshire (aged 0-25) with special educational needs and disabilities.

Ehlers-Danlos Syndrome Support UK

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Type of service:
Advice And Information
Address:
PO Box 748, Borehamwood, Hertfordshire, WD6 9HU
Telephone number:
0800 907 8518
Service description:
Ehlers-Danlos Syndrome (EDS) UK support, advise and inform those living with Ehlers-Danlos syndrome with the aim to help them live a full, active and positive life.

There are regular events and conferences to bring the community together, and produce literature and merchandise to increase understanding and improve management of the condition.

There are over 30 support groups around the country to provide members with a local peer support network.

There is a freephone helpline which is available to everyone, including people with EDS as well as friends, families, carers, and healthcare professionals. The helpline is run by a Registered Nurse with a specialist interest in EDS.

For more information, visit the website.
Cost:
Not provided
Age range:
0 - 0
Referral route:
  • Contact service direct
Last updated on:
22/08/2017

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