Services for children and young people in Northamptonshire (aged 0-25) with special educational needs and disabilities.

Ehlers-Danlos Syndrome Support UK

Type of service:
National Organisation
Address:
PO Box 748, Borehamwood, Hertfordshire WD6 9HU
Service description:
Ehlers-Danlos Syndrome (EDS) UK support, advise and inform those living with Ehlers-Danlos syndrome with the aim to help them live a full, active and positive life.

There are regular events and conferences to bring the community together, and produce literature and merchandise to increase understanding and improve management of the condition.

There are over 30 support groups around the country to provide members with a local peer support network.

There is a freephone helpline which is available to everyone, including people with EDS as well as friends, families, carers, and healthcare professionals. The helpline is run by a Registered Nurse with a specialist interest in EDS.

For more information, visit the website.
Cost:
Contact provider for cost details
Age range:
0 - 99 years
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on:
16/07/2018

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