Services for children and young people in Northamptonshire (aged 0-25) with special educational needs and disabilities.

The Hypermobility Syndromes Association (HMSA)

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Type of service:
National Organisation
Address:
49 Greek Street, Watford, Hertfordshire WD1 4EG
Telephone number:
033 3011 6388
Service description:
The HMSA is the only charity offering both practical support and Information Standards Accredited health and care information to people who have a hypermobility syndrome or who are involved in the care of someone with any of the hypermobility syndromes, including Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta.

Support and advice for people affected by hypermobility

• Accredited website
• Internet forums for peer support, moderated to ensure they are safe and accurate (some areas are only accessible by members)
• Helpline for support and advice, 7 days a week
• Local support groups, run by trained volunteers*
• Locally run facebook groups* – secure places to ask questions and gain valuable peer support, moderated by trained volunteers.
• Residential conferences and hypermobility masterclass events offering a chance to socialise with others who understand life with a hypermobility syndrome and improve understanding of hypermobility syndromes and their management**
• 1:1 advice from trained staff.*
• Advocacy is offered on a case by case basis. (This is not a guaranteed service as it depends on staff time and also proof of diagnosis via a medical letter.)*

*denotes a members only benefits
**priority given to members
Cost:
Free
Age range:
0 - 99 years
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on:
18/10/2017

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