Services for children and young people in Northamptonshire (aged 0-25) with special educational needs and disabilities.

Huntington's Disease Association

Type of service:
National Organisation
Suite 24, Liverpool Science Park IC1, 131 Mount Pleasant, Liverpool, Merseyside L3 5TF
Telephone number:
Email address:
Service description:
The Huntington’s Disease Association (HDA) supports people affected by the disease and provides information and advice to professionals.

Central Care Information, Advice, and Support Service
Call 0151 331 5444 weekdays (9am-5pm)

Specialist HD Advisory Service
• Provides information and advice to families
• Answers crisis calls and liaises with other professionals
• Promotes and develops a full range of local services
• Identifies suitable respite and residential care facilities
• Liaises with local branches and self-help groups
• Gives talks and organises seminars and training days
• Provides workshops and training

The Specialist HD Advisor for Oxfordshire, Northamptonshire, and Warwickshire is Sue Tompkins, who can be contacted on 01295 279970 or

Local Branches and Groups throughout the UK
A local, informal setting for families and individuals to:
• Mix socially
• Offer support and advice
• Share experiences and ideas
• Form local links with professionals and other groups in their community
• Raise funds
Contact details for the Northamptonshire Support Group are available via Head Office: 0151 331 5444.

Research Programme
The HDA’s programme promotes and funds both medical and social research. New applications from researchers are encouraged.
Age range:
0 - 99 years
Bengali, Polish, Punjabi, Urdu
Opening hours:
Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on:

 Also in this area

​Is this information incorrect?

If you are the provider of this service and your details are incorrect, please let us know by completing our online form.

If you need to register your service please fill out our online registration form.


.SMILE is an inspirational day centre that supports adults (18+) with learning difficulties. Based in Kettering, SMILE offer a rewarding environment t...

View on Facebook

Contact: EHC Plans (Sections B & F)

Book now if you'd like to attend - might be useful.

View on Facebook

The Lowdown

View on Facebook

Dolphin Disco

Don't miss the Dolphin Disco next week - open to anyone with a disability.

View on Facebook

IASS: Year 5 Seminar - Kettering

This seminar is for parents/carers of a child in Year 5 who has a statement/EHC plan or is receiving SEN support at school. Booking is essential - ple...

View on Facebook

Savoy: Ferdinand (Autism-Friendly)

Book now for this Sunday.

View on Facebook
20/10/2017 13:15
Local Offer annual audit and updates to the database
29/06/2017 07:38
A short report of the latest Summer Sendsation
20/03/2017 13:21
some of the events we have been to and are planning for 2017, including 2020 and Summer Sendsation
21/12/2016 11:37
An opportunity to look back at the last year on the Local Offer