Services for children and young people in Northamptonshire (aged 0-25) with special educational needs and disabilities.

Ehlers-Danlos Syndrome Support UK

Type of service:
National Organisation
Address:
PO Box 748, Borehamwood, Hertfordshire WD6 9HU
Service description:
Ehlers-Danlos Syndrome (EDS) UK support, advise and inform those living with Ehlers-Danlos syndrome with the aim to help them live a full, active and positive life.

There are regular events and conferences to bring the community together, and produce literature and merchandise to increase understanding and improve management of the condition.

There are over 30 support groups around the country to provide members with a local peer support network.

There is a freephone helpline which is available to everyone, including people with EDS as well as friends, families, carers, and healthcare professionals. The helpline is run by a Registered Nurse with a specialist interest in EDS.

For more information, visit the website.
Cost:
Contact provider for details
Age range:
0 - 99 years
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on:
18/10/2017

 Also in this area

​Is this information incorrect?

If you are the provider of this service and your details are incorrect, please let us know by completing our online form.

If you need to register your service please fill out our online registration form.

DISC in Towcester are offering a " Have a Go " day on Sunday 27th May from 1 to 5 . No need to book, bring your swimming kit.

DISC in Towcester are offering a
View on Facebook

Consultation on Direct Payments or Personal Budget rate for people with Personal Assistants

Consultation on Direct Payments or Personal Budget rate for people with Personal Assistants - Adult Social Services are consulting you about some prop...

Consultation on Direct Payments or Personal Budget rate for people with Personal Assistants - Adult Social Services are consulting you about some prop...
View on Facebook

Crick Boat Show

Crick Boat Show is on this weekend. https://www.crickboatshow.com/

Crick Boat Show is on this weekend. https://www.crickboatshow.com/
View on Facebook
23/02/2018 09:41
This is a copy of the article in SNIX Spring edition about support for siblings of children with special educational needs and disabilities.
20/10/2017 13:15
Local Offer annual audit and updates to the database
29/06/2017 07:38
A short report of the latest Summer Sendsation
20/03/2017 13:21
some of the events we have been to and are planning for 2017, including 2020 and Summer Sendsation