Type of service:
Genetic Alliance UK, Level 3 ,London, WC1N 3BH
SWAN UK is the only support network in the UK offering support and information to families of children and young adults with undiagnosed genetic conditions (also known as syndromes without a name). SWAN UK is run by the charity Genetic Alliance UK. SWAN UK have 3 aims:
• Develop and support a community of families of children affected by undiagnosed genetic conditions.
• Support the development of high quality information and services for families of children affected by undiagnosed genetic conditions.
• Raise public and professional awareness of undiagnosed genetic conditions and the unique challenges faced by affected families.
Northampton Local Parent Rep: Claire Walton (email 'email@example.com')
To join, send a registration form to 'firstname.lastname@example.org'
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