Rare Disease UK (RDUK)

Type of service:
Advice And Information
CAN Mezzanine, 49-51 East Road, Hackney, London N1 6AH
Telephone number:
020 7831 0883
Email address:
Service description:
Rare Diseases UK is the national alliance for people with rare diseases and all who support them. It was established by Genetic Alliance UK, the national charity of over 200 patient organisations supporting all those affected by genetic conditions. They:

   •  Campaign for a UK strategy for rare diseases
   •  Capture the experience of the rare disease community to inform policy
   •  Provide a united voice for the rare disease community
   •  Raise the profile of rare diseases
   •  Support the rare disease community

Registered charity no. 1114195.
Age range:
0 - 99 years
Eligibility criteria:
  • Diagnosis
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on: