Type of service:
Forums And Support Networks
CAN Mezzanine, 49-51 East Road, Hackney, London N1 6AH
SWAN UK is a support network run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. Your local Parent Rep is Claire Walton (email firstname.lastname@example.org
Registered charity no. 1114195.
Useful extra websites
RareConnect is a free online platform with disease specific communities and general discussion groups that can link people with rare conditions who may live hundreds of miles apart. Rare Connect website
Make sure you know all the names that people use for a condition. You can do this by going to orphanet website
and searching for a condition.
- Contact service direct
- No referral needed
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