Type of service:
Forums And Support Networks
CAN Mezzanine, 49-51 East Road, Hackney, London N1 6AH
SWAN UK is a support network run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. SWAN UK membership is available to all UK-based families of children and young adults with an undiagnosed genetic condition. Registered charity no. 1114195.
You may also find the following websites useful:RareConnectRareConnect
is a free online platform with disease-specific communities and general discussion groups that can link people with rare conditions.
Learm all the different names that might be used for a particular rare condition. Visit.
- Contact service direct
- No referral needed
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