Services for children and young people in Northamptonshire (aged 0-25) with special educational needs and disabilities.

Huntington's Disease Association

Type of service:
Forums And Support Networks
Suite 24, Liverpool Science Park IC1, 131 Mount Pleasant, Liverpool, Merseyside L3 5TF
Telephone number:
Email address:
Service description:
The Huntington’s Disease Association (HDA) supports people affected by the disease and provides information and advice to professionals.

Central Care Information, Advice, and Support Service
Call 0151 331 5444 weekdays (9am-5pm)

Specialist HD Advisory Service
• Provides information and advice to families
• Answers crisis calls and liaises with other professionals
• Promotes and develops a full range of local services
• Identifies suitable respite and residential care facilities
• Liaises with local branches and self-help groups
• Gives talks and organises seminars and training days
• Provides workshops and training

The Specialist HD Advisor for Oxfordshire, Northamptonshire, and Warwickshire is Sue Tompkins, who can be contacted on 01295 279970 or

Local Branches and Groups throughout the UK
A local, informal setting for families and individuals to:
• Mix socially
• Offer support and advice
• Share experiences and ideas
• Form local links with professionals and other groups in their community
• Raise funds
Contact details for the Northamptonshire Support Group are available via Head Office: 0151 331 5444.

Research Programme
The HDA’s programme promotes and funds both medical and social research. New applications from researchers are encouraged.
Age range:
0 - 99 years
Bengali, Polish, Punjabi, Urdu
Opening hours:
Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on:

 Also in this area

​Is this information incorrect?

If you are the provider of this service and your details are incorrect, please let us know by completing our online form.

If you need to register your service please fill out our online registration form.
28/06/2018 11:21
5 tips to help children find words from SpeechblogUK
23/02/2018 09:41
This is a copy of the article in SNIX Spring edition about support for siblings of children with special educational needs and disabilities.
20/10/2017 13:15
Local Offer annual audit and updates to the database
29/06/2017 07:38
A short report of the latest Summer Sendsation